Empowering Patients with Personalized Guides
Taking part in your care
With a cancer diagnosis, patients and their loved ones are often at a loss, met with unfamiliar terms, numerous appointments and lots of information.
At the University of Kansas Cancer Center, we empower patients and encourage them to be proactive about their treatment. One way we accomplish this is by providing newly diagnosed patients with a set of personalized cancer appointment, treatment and survivorship guides. Through these informative guides, we help patients navigate their diagnosis, treatment and survivorship and give them a sense of control at a crucial time.
The guides are created specifically for each patient – and no two are the same.
Plus, a custom mobile app for patients
When a patient receives their Treatment Guide, they will also be introduced to their personal mobile and tablet app. The app is unique to each patient and includes their treatment plan specifics. It also provides links to resources to assist them during treatment, allows patients to track their medications and symptoms, and connects with their nurse or navigator. If a patient's treatment plan changes, the new information is immediately available on their app.
The Patient Resource Appointment Guide provides patients with what they need to know and should expect prior to their first appointment. It allows patients to keep track of multiple appointment times, dates and locations in one convenient spot. It also includes photos of the medical team a patient will see, driving and parking instructions and resources for patients and families who come from outside Kansas City.
The Patient Resource Treatment Guide includes facts about a patient’s specific disease, stage of diagnosis and treatments they will receive. This helps reduce false or misleading information gleaned from other sources or the Internet. Letters from survivors with that particular disease offer inspiration and hope. Care team photos and biographies are included as well as a comprehensive list of advocacy and financial resources.
At the end of treatment, patients receive a Patient Resource Survivorship Guide. The survivorship guide assists patients in developing a survivorship care plan. It includes information about possible late effects, health and nutrition, returning to work and what to watch for to help identify signs of a possible recurrence or second cancer.
To learn more about our cancer program and the Patient Resource Guides, please call 913-588-1227 or toll free 844-323-1227.
A Gift from Uhlig
The program was made possible through a generous cash and in-kind donation from Uhlig LLC, a Kansas City-based technology company. Uhlig builds and manages content solutions, delivering custom information using publishing, digital and mobile technologies. In creating the Patient Resource Guides, Uhlig uses those same tools to provide patients with a sense of power and control during an overwhelming time.